Today is my birthday and I spent the whole day at Dana Farber for my 6 month check.
The past week and a half I have been feeling weird. I had body aches, nausea, and no appetite really. I thought maybe it was from WBC and doctor said maybe but keep eye on it by taking temperature every several hours.
This morning I got pricked 6 times before a successful IV was placed and then I had a pet scan. I then saw my doctor. I asked if I had gvhd, he said maybe. But also that maybe I have the aches from my bones trying to so something (like improve WBC). Never really addressed the nausea. I am going to try and see if marijuana cookies help with the pain and nausea. White was still low so I had to have bone marrow biopsy. Ouch! It still hurts right now.
As for the pet scan, my doctor is obviously not a radiologist but he thinks its a clean scan!!! He showed me one from 3 months ago that had activity in the stomach and it did not look like anything was there on the one from today!! Happy birthday to me!!!!
He will give me full results of scan and biopsy next week and I will update.