For the past month the swelling has come and my muscles and bones have hurt and it has been horrible. I was also very tired and just wanted to sleep all the time.
My gvhd is inflaming all of my muscles so my doctor had me go back on tacrolimus. I was on it for two weeks because we wanted to avoid prednisone because it's bad to be on for a long time and it was giving me acne last time. It was not working fast enough and I was miserable so he had me go back on prednisone. I am already starting to feel better.
My gums are also receding. I hope the steroids help with that too. My hair is getting longer but it's crazy & curly.