I have not posted a picture of my hair yet. I used to have the straightest hair- my entire life. If I tried to curl it, it would just fall down. Now it is curly and out of control. It's fun though.
For the past month the swelling has come and my muscles and bones have hurt and it has been horrible. I was also very tired and just wanted to sleep all the time. My gvhd is inflaming all of my muscles so my doctor had me go back on tacrolimus. I was on it for two weeks because we wanted to avoid prednisone because it's bad to be on for a long time and it was giving me acne last time. It was not working fast enough and I was miserable so he had me go back on prednisone. I am already starting to feel better. My gums are also receding. I hope the steroids help with that too. My hair is getting longer but it's crazy & curly. |